EDS Connective  Opiniones 

54
•
TrustScore: 4.5 sobre 5

4,6

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Consulta las opiniones de los clientes

Valorada con 5 estrellas sobre 5

EDS Connective is making diagnostic services more accessible. Especially with specialists being so difficult to find in my area. Their testing is thorough. Their doctors are responsive and quick. In... Ver más

Valorada con 5 estrellas sobre 5

incredible, super thorough, and not dismissive whatsoever! i was only on the waitlist for a few weeks and i had prepared myself for it to take months. once i submit my intake, it took less than a week... Ver más

Valorada con 3 estrellas sobre 5

Not worth the money. I paid for what I believed would be an actual telehealth visit with the treating provider, nope. And even though they explained that they do not offer this service, I could have... Ver más

Valorada con 5 estrellas sobre 5

I finally felt heard and seen by all parties involved with the collective. I feel as though the people who started the collective have allowed me to help my children through their hEDs journey making... Ver más

Información sobre la empresa

Escrito por la empresa

EDS Connective was built from lived experience and shaped alongside experts in connective tissue disorders. EDS Connective is a virtual health platform focused on improving access to diagnosis for hypermobile Ehlers-Danlos syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD). Through a 100% online telehealth process, EDS Connective connects individuals with independent, board-certified MD and DO physicians with specialized training in hEDS, HSD, and related connective tissue disorders. Physicians are licensed in all 50 states. No referrals are required. Physicians review medical and family history, symptoms, joint hypermobility, and other clinical features; apply current diagnostic criteria and clinical frameworks for hEDS and HSD; and screen for signs that may suggest other types of Ehlers-Danlos syndrome or heritable connective tissue disorders. When indicated, users may be referred for medical-grade genetic testing. Following the evaluation, individuals receive diagnostic results and detailed clinical documentation to share with their primary care and specialty care teams. EDS Connective’s mission is to make specialized hEDS and HSD diagnostic evaluation more accessible and help people get answers in as little as days, not decades.


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4,6

Excelente

TrustScore: 4.5 sobre 5

54 opiniones

5 estrellas
4 estrellas
3 estrellas
2 estrellas
1 estrella

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4,6

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53 opiniones en los últimos 12 meses

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Valorada con 5 estrellas sobre 5

The doctor I spoke with asked great…

The doctor I spoke with asked great follow up questions and actually listened to what I had to say. Probably one of the first doctors to make me feel validated about what I was going through. Eds connective has been so helpful through this whole process

6 de octubre de 2026
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Respuesta de EDS Connective

Thank you for sharing! We're so glad you felt heard, validated, and supported throughout your experience. We truly appreciate your kind words!

Valorada con 5 estrellas sobre 5

Thank you!!!

I have been trying for MANY years to get a diagnosis with doctors sending out referrals to major hospitals for genetic testing and was never able to get in. Year after year with my body falling apart, surgeries and therapies. I applied to EDSconnective and did not have to wait long for a reply! After the intake process I quickly received confirmation, diagnosis, genetic testing and validation! Thank you so very much EDSconnective! What you are doing is changing lives!

16 de octubre de 2026
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Respuesta de EDS Connective

Thank you so much for your wonderful review, Kimberly! We're so sorry for all you went through over years of searching for answers. It's sadly an all-too-common story among our users. But we are so happy to hear that you now have a diagnosis, validation, and clear next steps for genetic testing. Your words mean the world to us, truly! Thank you and our very best to you in all that comes next, Kimberly!

Valorada con 5 estrellas sobre 5

If I could give EDS connective 100…

If I could give EDS connective 100 stars I would! For the first time in a while, I feel listened to and validated when seeking medical care pertaining to my hypermobility. The intake was very thorough, and overall the experience was easy to navigate :-)

16 de octubre de 2026
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Respuesta de EDS Connective

Wow, Lacey - thank you! We are humbled at each one of those 100 stars. It is so wonderful to hear that you felt listened to and validated, and that the process was thorough and easy to navigate. Thank you so very much for your kind words and for allowing us to be part of this journey - it means so much to our team and your provider. Sending you our absolute best for everything that comes next. You've got this :)

Valorada con 5 estrellas sobre 5

Quick and Thorough!

The detailed questions were explained well so I was able to give complete answers, but wasn't so wordy it left me in the dust. There was plenty of space to share my story, and I felt the reviewing doctor took the time to look at all of it before giving me my results. Thanks!

2 de octubre de 2026
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Respuesta de EDS Connective

Hi Val, we're so glad to hear that the process hit the right balance of thorough and easy to understand, and that you felt like your doctor heard your story and really listened. Thank you so much for sharing your experience. We appreciate it very much!

Valorada con 5 estrellas sobre 5

My experience with EDS comnective was…

My experience with EDS comnective was great. I couldnt have asked for better. It was fast easy and thourough. Id reccomend this to anyone who needs awnswers. 10/10 reccomend to everyone.

11 de octubre de 2026
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Respuesta de EDS Connective

Thank you, Abby! We are so happy to hear that you had a great experience and that you would recommend us to others looking for answers. We give YOU a 10/10 right back. Thank you for trusting our team with this important step. Wishing you all our best, and we hope you'll keep us posted on your journey from here.

Valorada con 5 estrellas sobre 5

App was easy to follow

App was easy to follow, quick results!

2 de septiembre de 2026
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Respuesta de EDS Connective

So glad to hear that it was an easy process, Diane. Thank you for sharing your experience!

Valorada con 5 estrellas sobre 5

Best decision ever ...

Words cannot even start to express my gratitude. There are not a lot of resources where I'm currently living. The resources that are available have incredibly long wait times. ...OR... I'd get into a specialist only to feel like everyone was playing hot potato to another speciality.
EDS Connective experience from start to finish was straightforward and uncomplicated. I was able to complete the intake forms within a couple of hours. Took measurements and pictures. The questions were thorough and thoughtful. I was given every opportunity to explain everything that I needed and or wanted to. In return they asked only one clarifying question. I was then given the opportunity to give more information back. They had a chat feature where I could ask questions, upload documents, or leave a introductory video about myself. It was very clear to me that they wanted patients to feel heard and wanted.
Results were within a few days and I literally have my diagnosis in hand. I was sent for genetic testing and I'm still waiting on that piece of things. The feedback was the absolute best part, especially the doctor's notes section. It was personable, kind, thoughtful, well explained and straightforward. This absolutely changed my life and corrected my path to the correct doctors and specialists that I need to be in front of.
Long of short- BEST EXPERIENCE EVER.

24 de septiembre de 2026
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Respuesta de EDS Connective

BEST REVIEW EVER. Thank you so much for your thorough, helpful, and very kind review! We know how it feels to have a “diagnosis in hand” after many years of symptoms and searching for answers, and are so honored that we could help you get there. We’re so happy for you. Please keep us posted on your journey from here! 🩷

Valorada con 5 estrellas sobre 5

Tired of being gaslit? Start with EDS Connective!

Very easy process! Amazing to be able to start with a team of medical professionals who know EDS! Been gaslit my whole life and this organization helps with diagnosis and providing follow up documentation for your current health professional AND referrals for genetic testing.

7 de octubre de 2026
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Respuesta de EDS Connective

Yes, Lauren! Isn’t it amazing what a difference it makes when you feel heard and believed from the start? I’m so glad to hear that you had a positive experience and are feeling confident in sharing results with your care team. Thank you for taking the time to write such a lovely review. It means so much to us! 🩷🦓💪🏼

Valorada con 5 estrellas sobre 5

Excellent experience, top notch care

The evaluation was very thorough and professional, and my Dr was an excellent one. The entire team of this company is built of the best and the brightest minds in the EDS community, and I feel very confident and relieved in my diagnosis. I love the work they do with the EDS Society. The entire process was very simple. The team was very communal and very validating. When there was an issue with my final report, it was fixed immediately, and I received a follow up call from my Dr and an excellent email from the manager.

29 de septiembre de 2026
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Respuesta de EDS Connective

Wow, thank you so much for this kind review, Erin! I'm thrilled to hear that you are feeling confident and relieved, and that your provider was professional and validating. And I'm so glad to hear that the issue in your report was resolved quickly. We feel very fortunate that everyone on our team cares deeply for our customers and our mission. Again, thank you, and we are humbled and appreciative of your support. Keep us posted on everything that comes next - we wish you the absolute best!

Valorada con 4 estrellas sobre 5

A good and much needed service

A good and much needed service, fairly easy to get through to complete the evaluation. Not sure how clinically accurate it is without in-person evaluation or even any real dialogue with the evaluating physician. Not sure yet if the results will be validated by other medical professionals.

9 de octubre de 2026
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Respuesta de EDS Connective

Thank you for sharing your experience, Laura! We hear your concerns. Equipping users with the resources they need to share results with their primary care providers has always been one of our top priorities. Please let us know how that conversation goes, if you're willing to share - contact us any time at support@edsconnective.com.

Valorada con 5 estrellas sobre 5

It was easy to complete.

It was easy t complete; except changing my phone number to the correct phone number. It is still incorrect.

9 de octubre de 2026
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Respuesta de EDS Connective

Thanks so much for sharing your review, Theresa! I'm glad it looks like we were able to update your phone number the next business day. We're so pleased to hear that it was a great experience for you. Wishing you all the best.

Valorada con 5 estrellas sobre 5

Alternative diagnostic route.

I had a great experience with EDS connective. They clearly stated their purpose and made it very easy to enroll. It provided the service promised. The intake questionaire provided clear directions. I did find it took me longer than it said it should take to complete the questionaire. After submitting the intake, results were predicted in 3-5 days; I received mine sooner.

7 de octubre de 2026
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Respuesta de EDS Connective

Thank you for sharing your thoughts, Mary! We're so glad to hear you had a great experience, and that everything met your expectations. I know the intake takes a long time - we really appreciate every word that helps the providers understand the full clinical picture. Wishing you good health and that these answers will help you move forward with confidence. Thanks again!

Valorada con 5 estrellas sobre 5

Tickled Pink - So amazingly easy - I felt seen!

EDS Connective was a simple yet thorough evaluation that hit all of the nails on the head! I finally felt seen and heard! The evaluation was simple, with straight forward questions. The results and diagnosis were ready incredibly fast, and (in my case) genetic testing was quickly ordered for further investigation. I am tickled pink!

7 de octubre de 2026
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Respuesta de EDS Connective

Tickled pink is the best phrase 🩷 and perhaps only someone else who waited a long time for answers can understand that feeling! We're so glad to hear that you felt seen and heard - that means absolutely everything to us. Thank you so much for your kind words, and for trusting our team with this important step forward in your journey. We hope all goes well with your upcoming testing and that you now have the information you need to access the care and support you deserve in the future. Thank you again! Stay in touch 🙂

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